Impressive, though not-so-red-moon

But still. In honor of the occasion. From my front yard. 250mm lens, f5.6 at 1/3200 sec. Colors always wash out because I don’t know how to address color saturation in this type of photography.

1/3200 sec, f5.6

Sadly, my camera is way, way smarter than I am.

“God, why have you foresaken me.”

Perhaps that’s what this boy was saying. Much about that figure indicates why I have warmer feelings for Pope Francis than I do for his former or his current boss.
Screen Shot 2015-09-26 at 1.20.38 PM

Lexus edging out BMW in critical market segment

As if the VW scandal weren’t bad enough, German car makers are being rocked by a second indignity, the intrusion of Lexus into BMW’s home turf: the obnoxious one-percenter.

Yes this was the best parking space at the gym

Yes these are the two best parking spaces at the gym

It’s easy to see why BMW was complacent. Not long ago, I was honked at twice within a few hours by over-aggressive BMW drivers. But Lexus is catching up. I took this picture this morning at my gym. The car occupied two spaces right out front, precisely where an elderly person might have wanted to park going to the cardiac rehab class.

BMW marketing folk must be freaking out at pictures like this. It’s a sad decline of brand loyalty in a critical market segment.

Veronica Pollack responds to an internet heckler.

I wrote an op-ed in Thursday’s Chicago’s Sun Times about the impact of Illinois’s budget crisis on services to people with intellectual and developmental disabilities. A gentleman with initials “J.K.” read it, and sent me the below email.

JK's email

JK’s email

My wife Veronica happened to see it, and composed the below response, which I am posting below.

Dear J.K..

I would like to take a moment to address your question: “Why can’t your wife do it?” As I hear the question, you are really asking: “Why should my hard-earned tax dollars go to help you or people like you?”

First of all, I’d like to say that (I have learned) writers have little say over the headlines that are used for the pieces they write. I cringed when I saw the headline, “Who will help my brother-in-law?” I was concerned that people would jump to the conclusion that we were throwing up our hands and asking for help – an Op-Ed Go Fund Me, if you will. We are not. Harold’s purpose was to present the situation of a few real and relatable human beings being who are being negatively affected by the budget shenanigans going on in our state. He intended to illustrate the dilemma facing thousands of Illinois families, most much less fortunate than our own. Let me explain our situation, again as one example, and also talk a bit more about the needs of families of individuals with intellectual or developmental disabilities.

My widowed mother died suddenly in February of 2004. A few days after the funeral, my husband and I along with our two daughters – then seven and nine – drove Vincent to our home in the Chicago suburbs. We re-arranged our home, bought some furniture and settled him in. Almost immediately, I began to arrange his long-needed medical and dental care while helping him mourn the loss of his mother and everything that he knew.

Vincent lived with us for almost three years. The care for an intellectually disabled adult can be joyful, rewarding, but also relentless. There were no longer “babysitters” so every outing – read ballet lesson, soccer practice, pediatrician appointment, trip to the grocery store – became a tour de force. Vincent, like many people living with Fragile X syndrome (the cause of his disability) will eat everything in sight. He also sleeps poorly. This translates into excessive nighttime eating of everything from cereal, flour, mayonnaise – everything. We installed a lock on our refrigerator. Every night we would leave Vincent a snack, and we would stow all of our uncanned food into a few locked foot lockers. We would then drag these foot lockers into our garage to keep Vincent from prying into them.

When Vincent finally found a spot in a sheltered workshop – he was thrilled – the expectation was that I be ready for his pickup between 7 and 8:00 each morning. His drop off could be any time between 1:30 and 3:00 p.m. Do you know many people with a job that would accommodate this schedule? I don’t.

At the time Vincent came to us, I was working from our home on completing my PhD from the University of Michigan. The plan had been for me to work from home and commute as needed while caring for the house and our two children. Ultimately, it became impossible for me to continue. I have been out of the workforce since my entry into my doctoral program. Due to the erratic needs of my brother and some other family complexities, I haven’t been able to work for years.  I have volunteered in the community, at Vincent’s social service agency, at my church and in our local public schools.

As you mentioned, Harold is a professor at the University of Chicago. Imagine a single mother or a family living close to the edge and then impose the need to remove an adult from the workforce and loose years of potential income. This would be a crushing financial blow. Add in the medical expenses (more about this later) – paid for by your tax dollars via Medicaid and Medicare – and almost any family would be bankrupt.

Vincent has had many medical problems. Since his arrival in Illinois I have accompanied him to innumerable doctor appointments, emergency room visits and hospital stays. On one occasion Vincent was discharged from the hospital on three different intravenous antibiotics. He had a PICC line – a long-term IV that is inserted in the arm and ends at the superior vena cava. He needed me to administer the medications, care for the PICC line, give him injections of his anticoagulant medication and change dressings on the sores he had on his lower legs which were the source of his infection. This went on for a month. This was also the straw that broke the camel’s back with respect to my dissertation. Thankfully, my discipline is nursing.

Despite all of this, we were very lucky. Vincent is charming and funny. He has remarkable social intelligence. Perhaps most important, Vincent is very gentle. He is a large man, about 240 pounds. If he were physically aggressive, a fairly common issue among men with fragile X,  I don’t know how we would have managed.

Vincent is also able to feed, toilet, dress, and bathe himself. Not all individuals with intellectual and developmental disabilities have these skills. I can only imagine how much more relentless and exhausting these added responsibilities must be.

But, you ask, “What does this have to do with me?”

Well, let me ask you something: Do you, should we as a society, believe that the birth of a person with an intellectual or developmental disability should impose such a burden that the very idea should lead families to despair? Do we so devalue the lives that Vincent and his peers lead as to heap a crushing personal and financial blow to families upon the stigma already associated with life as a person living with an intellectual disability?

Vincent, like all people has a complex inner life. He has wishes and hopes for the future. He deeply wants to live the kind of life he perceives a “man” should live. He wants a job, a car, a cell phone. He wants to get married and have children. It is poignant to be with him as he is watching children with their parents. He often says, “Those will be my kids someday.” He loves our family and is fiercely proud and protective of his nieces. Nevertheless, he didn’t want to live in his sister’s house the rest of his life. Would you?

I hope that I have given you a glimpse into a situation not many people talk about. I can’t tell you how to feel. I hope that you would find it in your heart to see the value of efforts that help people with disabilities live with greater dignity. I also hope that you see the value of reducing the isolation and lightening the burdens experienced by many families who confront these challenges.



Whistle stop

Last night my family and one of our friends saw Mr. Holmes at the Chicago’s Landmark Century Theatre. On our way out, we went with everyone else to pay for parking.


A cheerful man of maybe 60 was standing there. I asked if he was in front of us on the line. “No,” he replied, a bit oddly but with a friendly smile. “I would punch that machine. It’s crazy. It’s crazy out there.”

He asked my friend if she thought it was crazy out there. She replied, “I know what you mean.”

“I carry a whistle,” he told her, holding it up. “Do you carry a whistle?”

“Some people carry one on their key chain,” she replied. He asked to see her keys.

My friend understandably got a bit nervous. “I’m not going to show you my keys.”

I handed her the parking ticket, and said “Would you get on the line for me?” She went ahead to do that.

“That’s some whistle you have there,” I told him. “What kind is that?”

“A Thunderer. A policeman gave it to me. If you see anything that isn’t right, anyone who needs help, you blow the whistle. That way, people will come. I wanted to give it to her.”

He added, a bit embarrassed:  ”She didn’t want to show me her keys. That’s good. You have to be safe.”

We chatted amiably. I asked if I could take a picture of it so I could buy one for my friend. I thanked him for the advice. We all happily went on our way.

Happy Mother’s Day, especially to all of you family caregivers

Today is Mother’s Day. I just want to give a shout-out to all of those family caregivers–usually though not always moms–who should be honored today, as well. Yeah, that is my wife and my brother-in-law in a fairly recent picture.

Screen Shot 2015-05-10 at 10.03.37 PMMore than 800,000 Americans diagnosed with intellectual or developmental disabilities currently live with a caregiver over the age of sixty. That’s usually “Mom,” with spouses, daughters, or others helping out.

Props to all of them. They’re working some serious overtime, in more than one way.

Congratulations to Dr. Vivek Murthy, our 19th Surgeon General

Just a nice moment.

Congratulations to Dr. Vivek Murthy, our nation’s nineteenth Surgeon General. Here’s a nice article in Vox about what he hopes to do in the position. Here’s another on why I am especially gratified by the outcomes of the successful nomination fight.

Also congrats to Dr. Alice Chen, with whom I worked closely at Doctors for America, which I advise.  I remember especially fondly sharing a burger with Alice and my brother-in-law Vincent while Vinnie and I were on a Hollywood vacation. Alice is a whirling dervish of energy. And she does it all with a smile.

PS. Congratulations to both Dr. Murthy and Dr. Chen on their engagement.

PPS: Dr. Murthy’s grandmother was on-hand to see Vice President Biden officiate at the swearing-in-ceremony. What kind of nachas is that?